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The 29-year-old from Chicago has Androgen Insensitivity Syndrome (AIS), a very rare disorder affecting 1 in 20,000 which prevents a womb from growing and causes testes to grow in the abdomen or other unusual places in the body.

The brunette - who currently works for a non-profit addressing the legal rights of intersex individuals - immediately phoned her mother to discuss her suspicions and was shocked to find her worst fears confirmed.

With the complete form of the syndrome, known as CAIS, the child, at birth, looks like a girl.

The genitals can have normal female appearance, but with undescended or partially descended testes and an unusually short vagina with no cervix.

However, the person does not menstruate and become fertile.

Vocal: Using social media to voice her thoughts, she recently tweeted: 'Diagnosed [with] testicular feminization (AIS) & labeled male pseudo-hermaphrodite exist in the gray.

Meanwhile, the blogosphere has been buzzing with the story of Caster Semenya, South African middle-distance runner who has been forced to take a gender test because her status as a female has been questions.” We all had the reaction that the other characters had on show: "What exactly is that?" We weren’t really sure and started to do some research and connected with Advocates for Informed Choice's Kimberly Zieselman.Complete androgen insensitivity prevents the penis and other male body parts from developing. The complete form of the syndrome occurs in as many as 1 in 20,000 live births. A person with complete AIS appears to be female but has no uterus, and has very little armpit and pubic hair.At puberty, female sex characteristics - such as breasts - develop.

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